TACAIDS website aims at disseminating and sharing of HIV and AIDS information and experience among stakeholders for proper implementation of various programs.

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Dr. Leonard L. Maboko


Civil Society Organizations(CSOs) Print E-mail

Civil Society Organizations - also known as non-governmental organizations - are critical actors in the advancement of universal values around human rights, the environment, labour standards and anti-corruption. As global market integration has advanced, their role has gained particular importance in aligning economic activities with social and environmental priorities. Civil society organizations have been an integral part of the Global Compact since its creation. Their perspectives, expertise and partnership-building capabilities are indispensable in the evolution and impact of the Global Compact. Civil Society Organizations (CSOs) have an important role to play in spearheading the community response against HIV/AIDS as clearly stipulated in the National Multisectoral Strategic Framework (2003-2007 & 2008-2012). The Non Government Organisations (NGOs), Faith Based Organisations (FBOs) and Community Based Organisations (CBOs) in particular, can mobilise, empower and support communities to respond effectively to the HIV/AIDS epidemic.

On 31st December 1999, His Excellency President William Mkapa announced that HIV/AIDS was now a National Disaster and urged the government, religious leaders, and political leaders including CSOs to take new measures to awaken the nation to fight HIV/AIDS. This means that Everyone must ask what they have done to make a positive contribution in fighting the pandemic and if they could do more and On 30th December 2005, His Excellency President Jakaya Mrisho Kikwete, on inaugurating the fourth phase Parliament of the United Republic of Tanzania stressed the importance of prevention by saying "HIV/AIDS pandemic has adversely affected the government delivery of services and it has decimated the national human resource base". Almost every Tanzanian now knows about HIV/AIDS, its effect and the means to protect oneself from infection. Yet, too many people do not yet comprehend the gravity of the situation and more public education and sensitization need to be provided.

CSOs are close to the community, can respond to community needs and offer their services in time to reduce the magnitude of HIV/AIDS within the community if they work hand in hand with respective LGAs. 

The National Multi Sectoral Strategic Framework (NMSF) on HIV/AIDS (2003-2007) for Tanzania, recognises that Civil Society Organisations have a very important role to play in mobilising and strengthening the competence of communities to live up to the challenges and threats of the HIV/AIDS epidemic and to develop appropriate responses. 

For this reason the NMSF requires Local Government Authorities to create or strengthen existing partnership that will help to support the improved capacity of communities to respond more effectively to HIV/AIDS. However for many Councils, the lack of adequate information regarding the number of CSOs, their capacity (strengths, weaknesses) and interests has frustrated their efforts to strengthen collaboration with CSOs. To address this limitation TACAIDS in collaboration with GTZ Multi sectoral AIDS Control Component (MACC) developed and piloted the use of Civil Society Mapping and Capacity Assessment tools. 

This tool enables the council to undertake a process to develop an inventory of CSOs, and assess their interest and capacity in supporting communities to strengthen their capacity to combat HIV/AIDS. In 2003, TACAIDS organised to adopt to use this tool by LGAs countrywide. 

TACAIDS shared this tool at a National Facilitators' Workshop it organised in November 2004 and later in 5 zonal workshops it organised in December 2004 using the cascading approach. Participants to these workshops were drawn from 121 Councils from all over the country. CHACs were among the participants. 

A workshop to review the lessons learnt from both the zonal training workshops held in December 2004 and other previous CMAC trainings found that CSO tools help to generate the right information on CSOs, but they needed to be made more user friendly. In response to this finding, TACAIDS organised a workshop to refine the Tool in Morogoro on January 2005. 

In May 2005, a joint GTZ and TACAIDS team pre-tested the CSO tools that had undergone significant changes during the refinement. The pre-testing of these tools was done with some of the CSOs at Mbeya Rural district and Mbeya Municipality. The feedback received was used to further refine the tools and has helped to make them clearer particularly to CSOs. 

Since April 2005 Regional Facilitating Agencies (RFAs) adopted the tool and started using it for mapping and capacity assessment of CSOs. The process has the following major steps: 

1. Introduction of the Mapping and Capacity Assessment process at regional levels. 
2. Conducting Council Directors workshop 
3. Selection and training of the Assessment team 
4. Fact sheet Distribution to CBOs, NGOs and FBOs & collection Preliminary screening of CSO fact sheet 
5. Field visits of AT members to selected CSOs 
6. Analysis of field visit information collected from CSOs and Ranking 
7. Consideration of recommendation by CMAC on CBOs, NGOs and FBOs to be invited to the Workshop on proposal writing 
8. CBOs and NGOs/FBOs workshop on proposal writing 
9. Assessment of CBOs and NGOs/FBOs proposals. 
10. Consideration on Recommendations by CMAC on CBOs, NGOs & FBOs for funding. 

The following is the product of Mapping and Capacity Assessment process at regional levels as done by the Regional Facilitating Agencies (RFAs) in Tanzania Mainland.



Tayopa stands for Tanzania Youth ambassador living with HIV/AIDS. It was established in 1998 and formally registered in 2001. It is lead by chairperson, secretary and treasurer. It also has executive committee. The major decisions are made by general meeting that is held after every five years. TAYOPA has 4 branches in Morogoro, Mbeya, Ruvuma and Rukwa. The main activity of TAYOPA is to provide education for in school and out of school youth. Up to now, TAYOPA is working hand in hand with various organizations including, TACAIDS, ACTION AID, AXIOS, FHI and RFA and HDT. Challenges: Low capacity of reaching many needy youth, most youth organizations are not yet capacitated and most of them have no permanent offices and skilled managers. 

Strategies: To have youth braches country wide, to build capacity of youth living with HIV/AIDS, to have common voice in order to advocate for youth rights, to work hand in hand with government in order to strengthen war against HIV/AIDS.

Tanzania Network of organizations of people Living with HIV/AIDS is a non-governmental, non-political and not for profit sharing organization. It was established in late 2001 and formally registered on 4th October 2002. It was established by 22 organizations but currently it has a total of 110 member organizations countrywide.

TANOPHA is needed because, to have a National coordinating body to galvanize the efforts of CBOs and NGOS formed by PLWHAs. To give voice and support to groups and organizations established, run and managed by PLHA in Tanzania. The vision of TANOPHA is  strives for strong and resourceful PLWHAs organizations and groups. The mission is to strengthen PLHA organizations and groups by protecting their rights and responsibilities and be able to participate in the national response to HIV/AIDS and its impacts. 

Challenges: Stigma, Unreliable and inconsistence funding, Poverty among the community, No strategic Networking, alliance or collaboration among PLHIV Networks, An informed selection criteria of PLHIV in National decision making structures e.g TNCM, GLIA, TACAIDS Commissioner, Inadequate working capacities especially for the Network members organizations. 

TANOPHA is currently developing its three years Strategic Plan in which the main focus is to build its capacity as well as the capacities of the member organizations.

Tanzania Network of Religious Leaders Living With or Personally Affected by HIV and AIDS (TANERELA)

TANERELA is Tanzania society where HIV and AIDS related stigma, transmissions and deaths are eliminated. In light of this vision, TANERELA+ seeks to: - Provide a platform where by the impact of HIV and AIDS is overcome in Tanzania, through the testimony and work of religious leaders living with or personally affected by HIV and AIDS. Also TANERELA aims at ensuring that Religious Leaders living with or personally affected by HIV and AIDS are empowered to: Break the silence and live openly and positively, End self-stigma, denial and shame, Be forces of change and action in their faith and surrounding communities. TANERELA+ exists to equip, empower and engage Religious Living with or personally affected by HIV and AIDS to live positively and openly as agents of hope and change in their faith communities and country at large. The goal is to found a highly effective network that links HIV+ or personally affected religious leaders for a positive fellowship, mutual support and empowerment in order to: Overcome self- stigma and break silence among men, women and children, Stimulating faith community responses to ending stigma and discrimination, Advocate for enhanced HIV and AIDS prevention care treatment and impact mitigation among women children and men, Address the very specific social and economic vulnerabilities and discriminations of the girl child. Successes: TANERELA office and staffs in place, Mobilized 117 TANERELA members, Establishment of four regional TANERELA branches Morogoro, Dodoma, Kigoma and Kagera, Organized two National retreats for Religious leaders living with HIV and AIDS, Establishment of Religious leaders HIV post- test club, Using media in S&D reduction, Reviewing ABC strategy among religious institutions. 

1. Disclosure reluctance 
2. Mis- action among religious institutions 
3. In actions among religious institutions. 
4. Antagonistic relationship between scientific approach and religious approach. On HIV and AIDS issues -: Prevention, care and treatment. 
5. Limited financial resources

TANEPHA was registered 11th August 2003. The objective of TANEPHA are; to collaborate with other Networks at local, National and International levels for joints actions, networking and coalition building. To established a National focal point for PLHIV information center and International issues. To lobby for access to drug for the treatment of opportunistic infections, ARVs and their availability at care support centers. The presenter continued to highlight on historical perspective by noting that since the outbreak of HIV/AIDS pandemic in Tanzania numerous responses have been put in place in the country including those organized by and for PLHIV. Mentioning some of the HIV/AIDS raises Difficult and Personal Issues he said they include: Health, Relationships, Financial security, Death or feelings about sexuality and Social and economic issues cause many problems.

TANEPHA aims to influence behavior change and help launch and strengthen support groups and Districts Associations of people living with HIV/AIDS. It also initiated the Ambassador of Hope program. This Program involves inter-districts visits by role models of behavior change, for the exchange and sharing of experiences and information and to influence policies. He said the network guiding principle includes: believe that the key strategy to comforting the pandemic; Is the recognition of Human Rights of all people living with HIV/AIDS in Tanzania. Also TANEPHA will strive to implement it objectives, to ensure effective development and strengthening of activities aimed to support people living with HIV/AIDS in Tanzania. It hopes to do through the following activities. TANEPHA Started as a voice to respond to the emotional needs, and loss reactions of learning about individual HIV positive status by Individual who come together to form groups. Also highlighted that most PLHIV gets problems for the lack of Information, Knowledge, Skills, and also have not been up-to-date to facilitate more effective and technical Involvement. 

PLHIVs networks face many challenges including competition, conflict among, PLHIV Networks, Support groups, Individuals which at last they undermining effect towards a collective and all inclusive response. In most cases PLHIV organization reported cases was: Lack of transparency, Lack of accountability, and in proper representation. 

TANEPHA Is collaborating and networking with the following Networks, National and International. GNP+(Global Network of People living with HIV/AIDS), NAP + (Network of African people living with HIV/AIDS), NAPWA-US (National of people with HIV/AIDS United State), CRN+ (Caribbean Regional Network of people living with HIV/AIDS, APN+ (Asian Pacific Network of people living with HIV/AIDS), NAPWA - SA (National Association of people with HIV/AIDS South Africa), NAP+ EAR (Network of African People living with HIV/AIDS Eastern Africa Region, FONNEPHAT ( Forum for National Networks of PLHIV in Tanzania), For seven years, since TANEPHA established, that is from Nov, 2001 March, 2008. By using NAP+ Ambassador of Hope, the following Associations, Network and CBOs for PLHIV was formed, AWITA Registered 2002, WOFATA (Registered 2002), NETWO+(Registered 2003), TAWOLIHA Mwanza (Registered 2000), PHAVIWA PLHIV Vingunguti, NEPHAKIDI ( PLHIV Kibaha), IPHA+ (PLHI V Ifakara), RUPHA (PLHIV Ruvuma). 

Activities performed by TANEPHA: Facilitated International HIV/AIDS Candlelight Memorial at Mwanza city 2002. With collaboration, facilitated International HIV/AIDS Candlelight Memorial at Dar Es Salaam City, HIV/AIDS awareness at the workplace 2003-2008 (SUA,PPF, BP Tanzania, CRDB, Plan), Facilitated Go Public for /Northern PLHIV and facilitated International HIV/AIDS Photographic exhibition-POSITIVE LIVES and Advocacy training for Dar es salaam PLHIV. Others includes, counseling at the VCT programs, Go public to community (Stigma Reduction), Home based care , by using CBOs, Go Public Training - Ifakara in Collaboration with Plan-Tanzania and Treatment Literacy-Country Wide in collaboration with NAPWA- US. 

TANEPHA strategy: Will work through Forum for National Networks of PLHIV in Tanzania (FONNEPHAT) National Council of PLHIV, while TANEPHA forming associations of PLHIV at District Levels, Why District Associations of PLHIV?, To put together PLHIV in a district to have a common voice. Also to ease lobbying and advocacy activities as far as the question of PLHIV is concerned, to establish a body that will work closely with CMACs and other relevant stakeholders, to facilitate the work of mobilization of PLHIV and the use of resources, to ease communication and planning, ease the task of identifying PLHIV at district level, ease coordination and treatment for PLHIV, through provision of ARVs, care and support programmes. 

Involving PLHIV in HIV/AIDS activities at all levels is crucial in establishing effective response to the epidemic, PLHIV: Give human face to problem, Empowering PLHIV: Are very effective campaigners for prevention and behavior change at community, from grassroots levels. Giving HIV+ face: Reduce the social stigma attached, and owns it as a social problem, with stigma and discrimination reduced: PLHIV will be empowered to seek for treatment care and support: THUS AN IMPROVEMENT FOR PLHIV QUALITY OF LIFE.

The fight against HIV/AIDS
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